Education and Awareness
Georgia Council on Lupus

Georgia Council on Lupus Education and Awareness

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GEORGIA ACTION PLAN 

In 2016, the GCLEA and the Lupus Foundation of America, Georgia Chapter convened a statewide workshop on Lupus called "Lupus is a Public Health Concern". The purpose of the workshop was to learn about lupus, share ideas and resources, and build sustainable relationships. In addition, our goal was to collaborate on an action plan for what the citizens of Georgia can do to increase awareness of lupus, and improve access to care and services for people living with lupus. As a result, this Georgia Action Plan delineates suggestions on what the citizens of this state can do to encourage and facilitate public and private action designed to combat lupus. You can find out more information about the Georgia Action Plan by going here



Telemedicine Pilot Study 

One of the missions of the Georgia Council on Lupus Education and Awareness (GCLEA) is to develop resources for communities that lack access to specialized lupus healthcare providers. Because most rheumatologists practice in metropolitan Atlanta, there is an overarching need to evaluate and treat persons living with lupus in underserved areas of Georgia.




To improve the lives of people living with lupus in Georgia, GCLEA partnered with various stakeholders to understand, educate, and implement a telemedicine pilot program in southwest Georgia. The GCLEA and stakeholders conducted a site visit of the Dougherty County Health Department and Clinic to survey the telemedicine equipment already in use at the that facility to examine prenatal mothers and sickle cell patients. We also assessed the attitudes, behaviors and beliefs of various medical professionals and lupus patients throughout the state about the use of telemedicine to diagnose and treat patients..
Lastly, we conducted a simulated telemedicine examination using 5 women living with lupus from Dougherty County and two rheumatologists from Emory University School of Mediciine. All pariticpants in the examination, completed an evaluatoin and the results of the entire study can be found here 
 
 

Healthcare Provider Survey  (Rheumatologists Survey Below):

The GCLEA Telemedicine Pilot Study needs your help by participating in this important project to raise awareness about lupus and increase access to telemedicine for lupus patients.  We seek to understand the attitudes about telemedicine among physicians, physician assistants, nurse practitioners, and lupus patients in the 38 counties in southwest Georgia by using a 16-question survey. 


If you are a physician, physician assistant, or nurse practitioner and your practice is in Atkinson, Bacon, Baker, Ben, Hill, Berrien, Brooks, Calhoun, Clay, Clinch, Coffee, Colquitt, Cook, Crisp, Decatur, Dooly, Dougherty, Early, Echols, Grady, Irwin, Lanier, Lee, Lowndes, Miller, Mitchell, Pulaski, Quitman, Randolph, Seminole, Stewart, Sumter, Terrell, Thomas, Tift, Turner, Webster, Wilcox, Worth counties, please complete our survey by clicking the following link:  

                                                        

 https://www.surveymonkey.com/r/gatelemedicine 

(rheumatologists see below)


Upon completion of the survey, each health care provider will be entered in a drawing to receive $100.00 gift card!

Rheumatologist Survey:

If you are a practicing rheumatologist in Georgia, please complete our survey by clicking on the following link:


https://www.surveymonkey.com/r/RHEUMATOLOGIST


Upon completion of the survey, each health care provider will be entered in a drawing to receive $100.00 gift card!


This project was supported by Grant Number 6 NU58DP006138-01-01; CFDA number 93.068, Developing and Disseminating Programs to Build Sustainable Lupus Awareness, Knowledge, Skills, and Partnerships through a grant from the National Association of Chronic Disease Directors and the Lupus Initiative, with funding from the Centers for Disease Control and Prevention.