Georgia Lupus Collaborative Workshop
August 14, 2020
VIRTUAL WORKSHOP - ZOOM
Council on Lupus Education and Awareness (GCLEA) is convening the workshop on
Friday, August 14, 2020 from 9:00 a.m. to 2:00 p.m. The goal
of the 2019 workshop was to share current activities and achievements, provide
perspective, create opportunities to collaborate in the future, and establish
sustainable connections. The goal of this
2020 workshop is to bring together attendees from last year, collectively called
the Georgia Lupus Collaborative, to contribute to our vision, solidify ideas, and engage additional
partners. The long term goal of the GCLEA and
the Georgia Lupus Collaborative is to contribute,
develop, and implement a comprehensive state action plan on lupus that will enhance
existing initiatives and create new initiatives to improve the lives of people
living with lupus.
You have been specifically invited by a member of the GCLEA and Georgia Lupus Collaborative to participate on August 14, 2020, in the next at large workshop because you have the skills, the knowledge, the fortitude to bring about change in the lupus arena. In addition to the goals outlined below, we have established a system to move these initiatives to the next level. We pray that you as experts and stakeholders from academia, government, nonprofit, and healthcare can help those of us living with lupus see a better future. The initiatives and the Collaborative are divided into the following groups:
- Public Outreach and Education – Enhance existing LFA, Georgia Chapter outreach efforts
- Research – public health, clinical, clinical trials, etc.
- Provider Outreach, Education, & Support– rheumatologists & non-rheumatologists
- Patient Services. & Resources – telemedicine, patient self-management, wellness, etc.
- Workforce Development – work rehabilitation, employer education, etc.
- Policy - draft policy based on the needs of the GCLEA and Georgia Lupus Collaborative
9:00 a.m. - 9:45 p.m. Introduction
J. Christopher Reed, J.D., Chair of GCLEA
S. Sam Lim, M.D., M.PH., Medical Advisor for GCLEA
9:45 a.m. - 10:30 p.m. - Workgroup Breakout Session 1
10:30 a.m. - 10:50 p.m. - Break
10:45 a.m. - 12:00 p.m. - Workgroup Breakout Session 2
12:00 p.m. - 12:30 p.m. - Lunch
12:30 p.m. - 1:15 p.m. - Workgroup Breakout Session 3
1:15 p.m. - 2:00 p.m. - Bringing the Pieces Together
State Rep. Kim Schofield, M.A./ Vice-Chair of GCLEA